“Keep Moving”: Experiences of People With Parkinson’s and Their Care Partners in a Dance Class

in Adapted Physical Activity Quarterly

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Laura Prieto University of Wisconsin—Madison

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Michael L. Norris Syracuse University

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Luis Columna University of Wisconsin—Madison

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DOI:
https://doi.org/10.1123/apaq.2019-0125
Keywords:
caregivers; community programs; quality of life; qualitative research
First Published Online:
16 Feb 2021
In Print:
Volume 38: Issue 2
Page Range:
307–328
Restricted access

The purpose of this study was to examine the experiences of people with Parkinson’s (PwP) and their care partners (CPs) who participated in a Parkinson’s-focused community dance class in a northeastern state of the United States. In this qualitative inquiry, participants included five PwP and their respective CPs (n = 5). Three major, recurrent, and interrelated themes emerged from the data. These themes were (a) keep moving, (b) compassion in action, and (c) acceptance and freedom in dance. These themes captured personal and environmental factors that influenced the participation of PwP and their CPs in a dance class and how they perceived that dance influenced their quality of life. The themes described the obstacles, motives, and perceived outcomes of participating in dance. The findings emphasize the need for future dance interventions and programs that consider the CPs’ role in promoting participation for PwP in dance classes.

Prieto and Columna are with the Dept. of Kinesiology, School of Education, Univerisity of Wisconsin–Madison, Madison, WI, USA. Norris is with Syracuse University, Syracuse, NY, USA.

Columna (lcolumna@wisc.edu) is corresponding author.
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