“Keep Moving”: Experiences of People With Parkinson’s and Their Care Partners in a Dance Class

in Adapted Physical Activity Quarterly

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Laura PrietoUniversity of Wisconsin—Madison

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Michael L. NorrisSyracuse University

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Luis ColumnaUniversity of Wisconsin—Madison

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DOI:
https://doi.org/10.1123/apaq.2019-0125
Keywords:
caregivers; community programs; quality of life; qualitative research
First Published Online:
16 Feb 2021
In Print:
Volume 38: Issue 2
Page Range:
307–328
Restricted access

The purpose of this study was to examine the experiences of people with Parkinson’s (PwP) and their care partners (CPs) who participated in a Parkinson’s-focused community dance class in a northeastern state of the United States. In this qualitative inquiry, participants included five PwP and their respective CPs (n = 5). Three major, recurrent, and interrelated themes emerged from the data. These themes were (a) keep moving, (b) compassion in action, and (c) acceptance and freedom in dance. These themes captured personal and environmental factors that influenced the participation of PwP and their CPs in a dance class and how they perceived that dance influenced their quality of life. The themes described the obstacles, motives, and perceived outcomes of participating in dance. The findings emphasize the need for future dance interventions and programs that consider the CPs’ role in promoting participation for PwP in dance classes.

Prieto and Columna are with the Dept. of Kinesiology, School of Education, Univerisity of Wisconsin–Madison, Madison, WI, USA. Norris is with Syracuse University, Syracuse, NY, USA.

Columna (lcolumna@wisc.edu) is corresponding author.
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  • Birks, M., Chapman, Y., & Francis, K. (2008). Memoing in qualitative research: Probing data and processes. Journal of Research in Nursing, 13(1), 68–75. https://doi.org/10.1177/1744987107081254

    • Search Google Scholar
    • Export Citation

  • Bognar, S., DeFaria, A.M., O’Dwyer, C., Pankiw, E., Simic Bogler, J., Teixeira, S., … Evans, C. (2017). More than just dancing: Experiences of people with Parkinson’s disease in a therapeutic dance program. Disability and Rehabilitation, 39(11), 1073–1078. PubMed ID: 27216230 https://doi.org/10.1080/09638288.2016.1175037

    • Search Google Scholar
    • Export Citation

  • Chan, F., Gelman, J.S., Ditchman, N., Kim, J.-H., & Chiu, C.-Y. (2009). The World Health Organization ICF model as a conceptual framework of disability. In E. Da Silva Cardoso& J.A. Chronister (Eds.), Understanding psychosocial adjustment to chronic illness and disability: A handbook for evidence-based practitioners in rehabilitation (pp. 23–50). Springer Publishing.

    • Search Google Scholar
    • Export Citation

  • Colorafi, K.J., & Evans, B. (2016). Qualitative descriptive methods in health science research. HERD: Health Environments Research & Design Journal, 9(4), 16–25. PubMed ID: 26791375 https://doi.org/10.1177/1937586715614171

    • Search Google Scholar
    • Export Citation

  • Creswell, J.W. (2009). Research design: Qualitative, quantitative, and mixed methods approaches. In V. Knight& S. Connelly (Eds.), Research design: Qualitative quantitative and mixed methods approaches  (3rd ed.). Sage.

    • Search Google Scholar
    • Export Citation

  • Ellis, T., Boudreau, J.K., DeAngelis, T.R., Brown, L.E., Cavanaugh, J.T., Earhart, G.M., … Dibble, L.E. (2013). Barriers to exercise in people with Parkinson disease. Physical Therapy, 93(5), 628–636. PubMed ID: 23288910 https://doi.org/10.2522/ptj.20120279

    • Search Google Scholar
    • Export Citation

  • Gilbert, A.G. (2015). Creative dance for all ages: A conceptual approach (2nd ed.) Human Kinetics.

  • Goldsworthy, B., & Knowles, S. (2008). Caregiving for Parkinson’s disease patients: An exploration of a stress-appraisal model for quality of life and burden. The Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 63(6), P372–P376. https://doi.org/10.1093/geronb/63.6.P372

    • Search Google Scholar
    • Export Citation

  • Goodwin, V.A., Richards, S.H., Taylor, R.S., Taylor, A.H., & Campbell, J.L. (2008). The effectiveness of exercise interventions for people with Parkinson’s disease: A systematic review and meta-analysis. Movement Disorders, 23(5), 631–640. PubMed ID: 18181210 https://doi.org/10.1002/mds.21922

    • Search Google Scholar
    • Export Citation

  • Hackney, M.E., & Earhart, G.M. (2009). Health-related quality of life and alternative forms of exercise in Parkinson disease. Parkinsonism and Related Disorders, 15(9), 644–648. PubMed ID: 19329350 https://doi.org/10.1016/j.parkreldis.2009.03.003

    • Search Google Scholar
    • Export Citation

  • Heiberger, L., Maurer, C., Amtage, F., Mendez-Balbuena, I., Schulte-Mönting, J., Hepp-Reymond, M.C., & Kristeva, R. (2011). Impact of a weekly dance class on the functional mobility and on the quality of life of individuals with Parkinson’s disease. Frontiers in Aging Neuroscience, 3, 1–15. https://doi.org/10.3389/fnagi.2011.00014

    • Search Google Scholar
    • Export Citation

  • Holmes, W.M., & Hackney, M.E. (2017). Adapted tango for adults with Parkinson’s disease: A qualitative study. Adapted Physical Activity Quarterly, 34(3), 256–275. PubMed ID: 28727513 https://doi.org/10.1123/apaq.2015-0113

    • Search Google Scholar
    • Export Citation

  • Houston, S. (2011). The methodological challenges of research into dance for people with Parkinson’s. Dance Research, 29(Suppl.), 329–351. https://doi.org/10.3366/drs.2011.0023

    • Search Google Scholar
    • Export Citation

  • Houston, S., & McGill, A. (2013). A mixed-methods study into ballet for people living with Parkinson’s. Arts and Health, 5(2), 103–119. PubMed ID: 23805165 https://doi.org/10.1080/17533015.2012.745580

    • Search Google Scholar
    • Export Citation

  • Kuyken, W. (1995). The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization. Social Science & Medicine, 41(10), 1403–1409. https://doi.org/10.1016/0277-9536(95)00112-K

    • Search Google Scholar
    • Export Citation

  • Martinez-Martin, P., Rodriguez-Blazquez, C., & Forjaz, M.J. (2012). Quality of life and burden in caregivers for patients with Parkinson’s disease: Concepts, assessment and related factors. Expert Review of Pharmacoeconomics & Outcomes Research, 12(2), 221–230. https://doi.org/10.1586/erp.11.106

    • Search Google Scholar
    • Export Citation

  • McDougall, J., Wright, V., & Rosenbaum, P. (2010). The ICF model of functioning and disability: Incorporating quality of life and human development. Developmental Neurorehabilitation, 13(3), 204–211. PubMed ID: 20450470 https://doi.org/10.3109/17518421003620525

    • Search Google Scholar
    • Export Citation

  • Merriam, S.B. (1998). Qualitative research and case study applications in education. Jossey-Bass.

  • Miller, K., & Zook, E.G. (1997). Care partners for persons with AIDS: Implications for health communication. Journal of Applied Communication Research, 25(1), 57–74. https://doi.org/10.1080/00909889709365465

    • Search Google Scholar
    • Export Citation

  • Nimwegen, M., Speelman, A.D., Hofman-Van Rossum, E.J.M., Overeem, S., Deeg, D.J.H., Borm, G.F., … Munneke, M. (2011). Physical inactivity in Parkinson’s disease. Journal of Neurology, 258(12), 2214–2221. PubMed ID: 21614433 https://doi.org/10.1007/s00415-011-6097-7

    • Search Google Scholar
    • Export Citation

  • Patton, M.Q. (2002). In V. Knight & K. Bierach (Eds.), Qualitative research & evaluation methods: Integrating theory and practice (pp. 143–198). Sage.

    • Search Google Scholar
    • Export Citation

  • Pretzer-Aboff, I., Galik, E., & Resnick, B. (2009). Parkinson’s Disease: Barriers and facilitators to optimizing function. Rehabilitation Nursing, 34(2), 54–60. https://doi.org/10.1002/j.2048-7940.2009.tb00249.x

    • Search Google Scholar
    • Export Citation

  • QSR International Pty Ltd. (2018). NVivo Version 12. https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home

  • Quinn, L., Busse, M., Khalil, H., Richardson, S., Rosser, A., & Morris, H. (2010). Client and therapist views on exercise programmes for early-mid stage Parkinson’s disease and Huntington’s disease. Disability and Rehabilitation, 32(11), 917–928. PubMed ID: 19874213 https://doi.org/10.3109/09638280903362712

    • Search Google Scholar
    • Export Citation

  • Ravenek, M.J., & Schneider, M.A. (2009). Social support for physical activity and perceptions of control in early Parkinson’s disease. Disability and Rehabilitation, 31(23), 1925–1936. PubMed ID: 19479519 https://doi.org/10.1080/09638280902850261

    • Search Google Scholar
    • Export Citation

  • Sandelowski, M. (2000). Whatever happened to qualitative description. Research in Nursing, 23, 334–340.

  • Sharp, K., & Hewitt, J. (2014). Dance as an intervention for people with Parkinson’s disease: A systematic review and meta-analysis. Neuroscience and Biobehavioral Reviews, 47, 445–456. PubMed ID: 25268548 https://doi.org/10.1016/j.neubiorev.2014.09.009

    • Search Google Scholar
    • Export Citation

  • Tunur, T., Rickford, K., & Columna, L. (2017). Moving through possibilities: Using dance for individuals with Parkinson’s disease. Palaestra, 31(4), 15–20.

    • Search Google Scholar
    • Export Citation

  • Westheimer, O., McRae, C., Henchcliffe, C., Fesharaki, A., Glazman, S., Ene, H., & Bodis-Wollner, I. (2015). Dance for PD: A preliminary investigation of effects on motor function and quality of life among persons with Parkinson’s disease (PD). Journal of Neural Transmission, 122(9), 1263–1270. PubMed ID: 25836752 https://doi.org/10.1007/s00702-015-1380-x

    • Search Google Scholar
    • Export Citation

  • World Health Organization. (2001). International classification of functioning, disability, and health: ICF. https://www.who.int/classifications/icf/en/

    • Search Google Scholar
    • Export Citation

  • Zaman, A., Ellingson, L., Sunken, A., Gibson, E., & Stegemöller, E.L. (2019). Determinants of exercise behaviour in persons with Parkinson’s disease. Disability and Rehabilitation. https://doi.org/10.1080/09638288.2019.1638975

    • PubMed
    • Search Google Scholar
    • Export Citation
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