#DCD/Dyspraxia in Real Life: Twitter Users’ Unprompted Expression of Experiences With Motor Differences

in Journal of Motor Learning and Development

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Priscila M. Tamplain Department of Kinesiology, University of Texas at Arlington, Arlington, TX, USA

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https://orcid.org/0000-0003-2713-5733
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Nicholas E. Fears School of Kinesiology, University of Michigan, Ann Arbor, MI, USA
School of Kinesiology, Louisiana State University, Baton Rouge, LA, USA

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https://orcid.org/0000-0001-7081-0015
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Promise Robinson Department of Kinesiology, University of Texas at Arlington, Arlington, TX, USA

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Riya Chatterjee School of Kinesiology, University of Michigan, Ann Arbor, MI, USA

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Gavin Lichtenberg School of Kinesiology, University of Michigan, Ann Arbor, MI, USA

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Haylie L. Miller School of Kinesiology, University of Michigan, Ann Arbor, MI, USA

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https://orcid.org/0000-0003-4372-1206 *
DOI:
https://doi.org/10.1123/jmld.2023-0008
Keywords:
social media; adults; motor skills; clumsiness; motor development
First Published Online:
24 Aug 2023
In Print:
Ahead of Print
Page Range:
1–14
Restricted access

Little is known about adults’ experiences with developmental coordination disorder (DCD; sometimes also referred to as dyspraxia). Social media is an accessible opportunity for those who identify as dyspraxic or as having DCD to provide valuable insight into the lifespan impact of this condition on functional ability, participation, compensatory strategies, and well-being. We used the Twitter research application programming interface to identify users who self-identified with the keywords Developmental Coordination Disorder, #DCD, #dyspraxic (or # dyspraxia), or clumsy in their profile descriptions between October 10 and November 10, 2021. During that period, 818 tweets were harvested with 524 remaining after removing duplicates (e.g., multiple promotions of a single resource) and unrelated tweets. They were labeled according to motor differences (general motor, coordination, fine motor skills, oral motor skills, manual dexterity, driving, gross motor skills, movement pain and fatigue, posture and balance, and lower extremity); functional impact (advocacy/awareness, support for others, resources, information, and education, intervention, accommodation, and work); or other related topics (stimming and sensory, co-occurrence and diagnostic overlap, cognitive, social and communication speech, and emotional and mental health). The DCD/dyspraxic community has clearly identified a lifelong impact of motor differences across multiple contexts. DCD/dyspraxic Twitter users shared compensatory strategies that could help others, and offered insight into their experience of co-occurring conditions and cognitive/emotional sequelae of motor challenges.

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Journal of Motor Learning and Development

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  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Author.

  • Blank, R., Barnett, A.L., Cairney, J., Green, D., Kirby, A., Polatajko, H., Rosenblum, S., Smits-Engelsman, B., Sugden, D., Wilson, P., & Vinçon, S. (2019). International clinical practice recommendations on the definition, diagnosis, assessment, intervention, and psychosocial aspects of developmental coordination disorder. Developmental Medicine & Child Neurology, 61(3), 242–285. https://doi.org/10.1111/dmcn.14132

    • Search Google Scholar
    • Export Citation

  • Cairney, J., Rigoli, D., & Piek, J. (2013). Developmental coordination disorder and internalizing problems in children: The environmental stress hypothesis elaborated. Developmental Review, 33(3), 224–238. https://doi.org/10.1016/j.dr.2013.07.002

    • Search Google Scholar
    • Export Citation

  • Cavalcante Neto, J.L., Steenbergen, B., Wilson, P., Zamuner, A.R., & Tudella, E. (2020). Is Wii-based motor training better than task-specific matched training for children with developmental coordination disorder? A randomized controlled trial. Disability & Rehabilitation, 42(18), 2611–2620. https://doi.org/10.1080/09638288.2019.1572794

    • Search Google Scholar
    • Export Citation

  • Cleaton, M.A.M., Tal-Saban, M., Hill, E.L., & Kirby, A. (2021). Gender and age differences in the presentation of at-risk or probable Developmental Coordination Disorder in adults. Research in Developmental Disabilities, 115, Article 104010. https://doi.org/10.1016/j.ridd.2021.104010

    • Search Google Scholar
    • Export Citation

  • Deconinck, F.J.A., Savelsbergh, G.J.P., De Clercq, D., & Lenoir, M. (2010). Balance problems during obstacle crossing in children with Developmental Coordination Disorder. Gait & Posture, 32(3), 327–331. https://doi.org/10.1016/j.gaitpost.2010.05.018

    • Search Google Scholar
    • Export Citation

  • Du, W., Wilmut, K., & Barnett, A.L. (2015). Level walking in adults with and without developmental coordination disorder: An analysis of movement variability. Human Movement Science, 43, 9–14. https://doi.org/10.1016/j.humov.2015.06.010

    • Search Google Scholar
    • Export Citation

  • Elo, S. & Kyngäs, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62,(1) 107–115. https://doi.org/10.1111/j.1365-2648.2007.04569.x

    • Search Google Scholar
    • Export Citation

  • Forsey, C. (2019). What is Twitter and how does it work? https://blog.hubspot.com/marketing/what-is-twitter

  • Gagnon-Roy, M., Jasmin, E., & Camden, C. (2016). Social participation of teenagers and young adults with developmental co-ordination disorder and strategies that could help them: Results from a scoping review. Child: Care, Health and Development, 42(6), 840–851. https://doi.org/10.1111/cch.12389

    • Search Google Scholar
    • Export Citation

  • Gentle, J., Brady, D., Woodger, N., Croston, S., & Leonard, H.C. (2021). Driving skills of individuals with and without developmental coordination disorder (DCD/dyspraxia). Frontiers in Human Neuroscience, 15, Article 635649. https://doi.org/10.3389/fnhum.2021.635649

    • Search Google Scholar
    • Export Citation

  • Harris, S., Wilmut, K., & Rathbone, C. (2021). Anxiety, confidence and self-concept in adults with and without developmental coordination disorder. Research in Developmental Disabilities, 119, Article 104119. https://doi.org/10.1016/j.ridd.2021.104119

    • Search Google Scholar
    • Export Citation

  • Hausdorff, J.M. (2005). Gait variability: Methods, modeling and meaning. Journal of NeuroEngineering and Rehabilitation, 2(1), 19. https://doi.org/10.1186/1743-0003-2-19

    • Search Google Scholar
    • Export Citation

  • Hill, E.L., & Brown, D. (2013). Mood impairments in adults previously diagnosed with developmental coordination disorder. Journal of Mental Health, 22(4), 334–340. https://doi.org/10.3109/09638237.2012.745187

    • Search Google Scholar
    • Export Citation

  • Hunt, J., Zwicker, J.G., Godecke, E., & Raynor, A. (2021). Awareness and knowledge of developmental coordination disorder: A survey of caregivers, teachers, allied health professionals and medical professionals in Australia. Child: Care, Health and Development, 47(2), 174–183. https://doi.org/10.1111/cch.12824

    • Search Google Scholar
    • Export Citation

  • Iuzzini-Seigel, J., Moorer, L., & Tamplain, P. (2022). An investigation of Developmental Coordination Disorder (DCD) characteristics in children with Childhood Apraxia of Speech (CAS). Language, Speech, and Hearing Services in Schools, 53(4), 1006–1021. https://doi.org/10.1044/2022_LSHSS-21-00163

    • Search Google Scholar
    • Export Citation

  • Jelsma, D., Geuze, R.H., Mombarg, R., & Smits-Engelsman, B.C.M. (2014). The impact of Wii Fit intervention on dynamic balance control in children with probable Developmental Coordination Disorder and balance problems. Human Movement Science, 33, 404–418. https://doi.org/10.1016/j.humov.2013.12.007

    • Search Google Scholar
    • Export Citation

  • Kadesjo, B., & Gillberg, C. (1998). Attention deficits and clumsiness in Swedish 7-year-old children. Developmental Medicine and Child Neurology, 40(12), 796–804. https://doi.org/10.1111/j.1469-8749.1998.tb12356.x

    • Search Google Scholar
    • Export Citation

  • Kirby, A., Sugden, D., Beveridge, S., Edwards, L., & Edwards, R. (2008). Dyslexia and developmental co-ordination disorder in further and higher education-similarities and differences. Does the “label” influence the support given? Dyslexia, 14(30), 197–213.

    • Search Google Scholar
    • Export Citation

  • Leonard, H.C., Bernardi, M., Hill, E.L. & Henry, L.A. (2015). Executive functioning, motor difficulties and Developmental Coordination Disorder. Developmental Neuropsychology, 40(4), 201–215. https://doi.org/10.1080/87565641.2014.997933

    • Search Google Scholar
    • Export Citation

  • Leonard, H.C., & Hill, E.L. (2015). Executive difficulties in Developmental Coordination disorder: Methodological issues and future directions. Current Developmental Disorders Reports, 2(2), 141–149. https://doi.org/10.1007/s40474-015-0044-8

    • Search Google Scholar
    • Export Citation

  • Licari, M.K., Alvares, G.A., Varcin, K., Evans, K.L., Cleary, D., Reid, S.L., Glasson, E.J., Bebbington, K., Reynolds, J.E., Wray, J., & Whitehouse, A.J. (2020). Prevalence of motor difficulties in autism spectrum disorder: Analysis of a population‐based cohort. Autism Research, 13(2), 298–306. https://doi.org/10.1002/aur.2230

    • Search Google Scholar
    • Export Citation

  • Macready, H. (2022). How to use hashtags in 2022: A guide for every network. Social Media Marketing & Management Dashboard. https://blog.hootsuite.com/how-to-use-hashtags/

    • Search Google Scholar
    • Export Citation

  • Miller, H., Sherrod, G., Mauk, J., Fears, N., & Tamplain, P. (2021). Shared features or co-occurrence? Evaluating symptoms of Developmental Coordination Disorder in children and adolescents with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 51(10), 3443–3455. https://doi.org/10.1007/s10803-020-04766-z

    • Search Google Scholar
    • Export Citation

  • Polatajko, H., Fox, M., & Missiuna, C. (1995). An international consensus on children with developmental coordination disorder. Canadian Journal of Occupational Therapy, 62(1), 3–6.

    • Search Google Scholar
    • Export Citation

  • Purcell, C., Scott-Roberts, S., & Kirby, A. (2015). Implications of DSM-5 for recognizing adults with Developmental Coordination Disorder (DCD). British Journal of Occupational Therapy, 78(5), 295–302. https://doi.org/10.1177/0308022614565113

    • Search Google Scholar
    • Export Citation

  • Sanger, T.D. (2015). Movement disorders in cerebral palsy. Journal of Pediatric Neurology, 13(4), 198–207. https://doi.org/10.1055/s-0035-1558866

    • Search Google Scholar
    • Export Citation

  • Sanger, T.D., Chen, D., Delgado, M.R., Gaebler-Spira, D., Hallett, M., & Mink, J.W. (2006). Definition and classification of negative motor signs in childhood. Pediatrics, 118(5), 2159–2167. https://doi.org/10.1542/peds.2005-3016

    • Search Google Scholar
    • Export Citation

  • Scott-Roberts, S., & Purcell, C. (2018). Understanding the functional mobility of adults with Developmental Coordination Disorder (DCD) through the International Classification of Functioning (ICF). Current Developmental Disorders Reports, 5,(1) 26–33. https://doi.org/10.1007/s40474-018-0128-3

    • Search Google Scholar
    • Export Citation

  • Tal-Saban, M., Zarka, S., Grotto, I., Ornoy, A., & Parush, S. (2012). The functional profile of young adults with suspected Developmental Coordination Disorder (DCD). Research in Developmental Disabilities, 33(6), 2193–2202. https://doi.org/10.1016/j.ridd.2012.06.005

    • Search Google Scholar
    • Export Citation

  • Tamplain, P., & Miller, H. (2021). What can we do to promote mental health among individuals with Developmental Coordination Disorder? Current Developmental Disorders Report, 8(1), 24–31. https://doi.org/10.1007/s40474-020-00209-7

    • Search Google Scholar
    • Export Citation

  • Thomas, M., & Christopher, G. (2018). Fatigue in developmental coordination disorder: An exploratory study in adults. Fatigue: Biomedicine, Health & Behavior, 6(1), 41–51.

    • Search Google Scholar
    • Export Citation

  • Verbecque, E., Johnson, C., Rameckers, E., Thijs, A., van der Veer, I., Meyns, P., Smits-Engelsman, B., & Klingels, K. (2021). Balance control in individuals with developmental coordination disorder: A systematic review and meta-analysis. Gait & Posture, 83, 268–279. https://doi.org/10.1016/j.gaitpost.2020.10.009

    • Search Google Scholar
    • Export Citation

  • Williams, M.L., Burnap, P., & Sloan, L. (2017). Towards an ethical framework for publishing twitter data in social research: Taking into account users’ views, online context and algorithmic estimation. Sociology, 51(6), 1149–1168. https://doi.org/10.1177/00380385177081

    • Search Google Scholar
    • Export Citation

  • Wilson, B.N, Neil, K., Kamps, P.H., & Babcock, S. (2013). Awareness and knowledge of developmental co-ordination disorder among physicians, teachers and parents. Child: Care, Health, and Development, 39(2), 296–300. https://doi.org/10.1111/j.1365-2214.2012.01403.x

    • Search Google Scholar
    • Export Citation
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