Children with CHARGE syndrome, an extremely complex, highly variable genetic disorder, are significantly delayed in the onset of their motor milestones in comparison with children without disabilities due to sensory and motor deficits as well as lengthy hospitalizations and reduced physical activity. Currently, the role of parents’ perceptions and participation in the motor development of their child with CHARGE is unknown. The purpose of this study was to examine the associations between parents’ perceptions and their child’s motor competence, comparing parents of children with and without CHARGE syndrome. Participants included 33 children with CHARGE and 38 children without disabilities. Parents completed the Child’s Movement Skills Research parent survey and children were assessed on their gross motor skills. Parental ratings of locomotor ability and time spent participating with their child predicted the locomotor, ball skill, and total motor skill scores in the CHARGE group. Control group parents’ rating of ball scores predicted ball skill and total skill scores. The results indicate that parents may play an important role in their child with CHARGE syndrome’s motor development. Parents who are more involved with their child’s movement activities can positively influence their motor competence.
Associations Between Parent Perspectives and Motor Competence in Children With CHARGE Syndrome
Pamela Haibach-Beach, Melanie Perreault, Lauren J. Lieberman, and Alexandra Stribing
Self-Perceptions, Parents’ Perceptions, Metaperceptions, and Locomotor Skills in Adolescents With Visual Impairments: A Preliminary Investigation
Alexandra Stribing, Adam Pennell, Emily N. Gilbert, Lauren J. Lieberman, and Ali Brian
Individuals with visual impairments (VI) trend toward lower motor competence when compared with peers without VI. Various forms of perception often affects motor competence. Thus, it is important to explore factors that influence forms of perception and their differential effects on motor competence for those with VI. Therefore, the purposes of this study were to explore and describe the differential effects of age, gender, and degree of vision on self-perceptions, parents’ perceptions, metaperceptions, and locomotor skills, and to examine potential associations among all variables with actual locomotor competence for adolescents with VI. Adolescents with VI completed two questionnaires and the Test of Gross Motor Development-Third Edition. Parents completed a parent perception questionnaire. Mann–Whitney U and Kruskal–Wallis H analyses showed no differential effects for gender or age on any dependent measures. Degree of vision affected locomotor skills, but not any other factor. Spearman rho correlations showed significant associations among locomotor and self-perceptions, degree of vision and locomotor, and metaperceptions with parents’ perceptions. Adolescents reported relatively high self-perceptions and metaperceptions; however, their actual locomotor competence and parents’ perceptions were relatively low. Findings may help situate future intervention strategies targeting parents supporting their children’s locomotor skills through self-perceptions.